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Disability Wales/Anabledd Cymru

Submission to Richards Commission

22 May 2003

The Powers of the National Assembly for Wales
In what practical ways do the powers of the Assembly, or the limits on its powers, impinge on you, your organisation or the people whom you serve and what are best examples of this from your point of view?
Disability Wales/Anabledd Cymru (DW/AC) puts forward the following example outlining where some progress has been made on a particular issue affecting disabled people attributable to the existence and current powers of the Assembly.
Case Study
Disability Wales/Anabledd Cymru (DW/AC) co-ordinates the Coalition on Charging Cymru, which is a network of organisations concerned with the issues of disabled people, older people and carers. Member groups include Age Concern Wales, Mencap, Carers Wales, Arthritis Care and Cardiff and Vale Coalition of Disabled People. The Coalition, which has a counterpart in England was set up to campaign for the abolition of local authority charging for domiciliary care services to those assessed in need of them. This is on the grounds that it is a secondary tax, which has a disproportionate impact on those on the lowest incomes. The vast majority of people who receive community care are not working and live on benefits and/or pensions and charging pushes many either further into poverty or going without support services.
In February 2001 the NAfW followed the Department of Health in England in producing draft guidance to local authorities on 'fairer charging policies'. The document followed in the wake of an Audit Commission report, which heavily criticised 'the post-code lottery' of existing charging policies in the UK.
In addition to producing a collective response as part of the consultation process, the Coalition organised a well-attended lobby of Assembly Members and a 'breakfast briefing'. The Minister attended these as well as members of the Health and Social Services Committee and Assembly officials.
The Minister authorised research into the impact of charging on local authorities which was undertaken by Swansea University and formed part of the consultation process. The Coalition sought and was granted representation on the Assembly Steering Group overseeing the research.
The Coalition continued to correspond with the Minister and brief key members from all parties on the Health and Social Service Committee with such activity intensifying on the occasions where community care charging was debated at Committee meetings on 1 May and 6 November 2002. Briefings took the form of short meetings with individual AM's and papers detailing the arguments surrounding the complex nature of charging policies. Feedback from AM's indicated that they found this very helpful and many of our arguments were used in the debate.
The Assembly issued 'part one' of its Guidance in July 2002 and we noted that some of the points we had been lobbying on including treatment of spouses' income, and raising the savings threshold had been incorporated. Whereas the original draft guidance had been almost identical to the DoH version, concessions had been made in Wales to the formal guidance, which were not achieved in England.
The Minister further announced the formation of a Working Group to review matters relating to disability related costs and disability benefits disregards. Recommendations on how these matters are to be treated were to form 'part two' of the Guidance to be implemented from April 2004. Both were issues on which the Coalition had campaigned and which again demonstrated progress on this issue compared with England. The Coalition accepted the invitation to appoint a representative to the Working Group.
In the run up to the Assembly elections, not only did individual member organisations of the Coalition feature the issue of charging in their respective manifestos but so too did the four main political parties. In particular Welsh Labour, which went on to form the Government, made a specific manifesto pledge to "scrap Home Care charges for disabled people". The Coalition has written to the Minister requesting details of the timetable for implementing this pledge.
It was understood by the Coalition that abolition of charging could only be undertaken by central government so it will be of some interest to see how the Assembly Government will address this.
On a less positive note, following representations from local authorities, the Assembly has agreed to give them extra time to implement their Charging Policies in line with 'part one' of the Guidance. They were required to have these in place by 1 April 2003, but according to an Assembly circular dated 5 April, they now have until the end of the current financial year to do so.
From the Coalition's perspective this perpetuates for up to a year inequality and hardship for disabled people who require community care.
Analysis
As demonstrated through this case study the advent of the Assembly has brought advantages to disabled people in Wales compared with counterparts in England on the specific issue of Community Care Charging:
  • The Coalition has been able to obtain direct access to the Minister and key members of the Health and Social Services Committee to promote its cause, which would undoubtedly be more difficult at Central Government level;
  • The Coalition has been able to place the issue of charging within the context of Assembly duties on equality; its policies on social inclusion, anti-poverty and as contained in documents such as 'Better Health - Better Wales'; and its adoption of the Social Model of Disability in January 2002.
  • Individual disabled people have been able to take part in the campaign by attending lobbies at the Assembly which is accessible, writing to the Minister and their AM and visiting him or her in surgeries. One AM arranged to meet a constituent in her own home to discuss this issue because, as a wheelchair user, it was more convenient.
  • The Assembly's powers to make secondary legislation have been utilised on this issue, to the advantage of disabled people, older people and carers in Wales. It appears that Charging Policies will be at least less stringent than that in England providing that local authorities act in line with the formal guidance. The choice, quality and availability of community care services charged for or not remain a matter of concern and in need of considerable attention.
  • If the Assembly had primary legislative powers it could abolish the concept of charging rather than what may be the present course of action, finding the resources to meet the estimated £18 million shortfall in income derived from charging faced by local authorities.
  • If the Assembly had primary legislative powers it could require that local authorities took certain action. The power of local authorities to decide their own policies and spending priorities while democratically accountable locally, leads to inequalities in service provision and facilities across Wales which impacts particularly negatively on groups such as disabled people, older people and carers.
  • The effectiveness of the Coalition on Charging has been in part due to the tenacity of those involved, and the willingness of member organisations to commit resources via staff time to working in partnership on this issue. Some of these organisations receive funding from the Assembly itself, however not all groups have the ability to mount such a sustained campaign let alone simultaneously across several subject areas. Capacity issues amongst groups representing those who are excluded or face discrimination in some way must be addressed if even the existing powers of the Assembly are to be fully utilised.
Conclusion
Where the Assembly has a specific remit for an issue and the will of those in Government and the efficacy of a campaigning group combine to progress the matter, real change can be brought about to the benefit of people in Wales.
For those that DW/AC represents, the Assembly is somewhat removed from their everyday lives. The bodies that have the real impact are the local authority, Bus Company, social housing landlord or college. The extent to which the Assembly can set a strategic agenda and influence the policies and practice of such service providers to ensure availability of, and equal access to quality services that support inclusion remains to be fully tested. It is likely to be proportional both to the Assembly’s range of powers and their unfettered exercise. Thus extending the range of the Assembly’s reach and the granting of primary law making capacity will both be important elements in establishing the Assembly at the fore-front of both daily and public life in Wales. It is to be hoped that this will be reflected in a higher turn out in the Assembly election of 2007 than that achieved in May 2003.
DW/Consultations03/RichardCommission/Casestudy/RD/May03